Program Highlights

Plenary 1 - Thursday, 9:45-10:45 am

The Global Revolution: Transforming Health Systems Through PROMs

Moderator: David N. Bernstein, MD, PhD, MBA, MEI
Boston Children's Hospital

This plenary explores how PROMs are being used internationally to transform health systems. Insights
from international, national, and local initiatives will be shared, and speakers will examine what it
takes to make the patient voice count at scale, what has worked, what has failed, and how
PROMs can become part of the infrastructure of better care.

Making the Patient Voice Count; The Patient-Reported Indicator Surveys (PaRIS)
Michael van den Berg, PhD
Senior Health Policy Analyst
Organization for Economic Co-operation and Development (OECD)

From Measurement to Change: What Worked and What Failed
Dr. Slaveyko Djambazov, PhD, MBA
Founder and Managing Partner
HTA Ltd.

Razan Al Arafah, DDS, MBA
Senior Health Policy Expert
The G20 Global Innovation Hub

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Plenary 2 - Friday, 8:00-9:00 am

Operationalizing PROMIS for Meaningful Action: Advancing Systems,
Clinics, and the Patient Experience

Moderator: Susan Bartlett, PhD
McGill University

This plenary examines how PROMs are being embedded in clinical workflows, used in national registries
to monitor outcomes at scale, and made central to the patient experience. This session also highlights
the essential contribution of patients in developing and selecting PROMs that are not only useful for
quality assessment, care planning, and population monitoring but felt to be meaningful to them.

Developing and Selecting Meaningful Outcome Measures
with Patient Research Partners. Why is it so Difficult?
Maarten de Wit, PhD
Patient Expert
Stichting Tools

Patient-Reported Outcomes as a Core Engine of the Learning Health System:
From Measurement to Meaningful Clinical and Population Impact
Lara Evans, MD, MPH, FACP
Associate Chief Clinical Officer for Patient Engagement
Director, Patent Reported Outcomes, Quality Institute
Professor of Clinical Medicine, University of Rochester

The Fallacy of Routine Outcome Measurement: Measure Less, Learn More
Rudolf W. Poolman, MD, PhD
Professor of Orthopaedic Surgery
OLVG Amsterdam
Leiden University Medical Center

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International Update - Friday, 9:35-10:25 am

PROMIS Around the World - What's New?
PHO International Committee

Learn about activities of the International Committee, use of PROMIS
around the world, and the global work of PROMIS National Centers (PNCs).

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Plenary 3 - Friday, 3:45-4:45 pm

Real-World PROMs Action: Crosswalks, Interpretation, and AI for Better Care

Moderator: Felix Fischer, PhD
Charité – Universitätsmedizin Berlin

This plenary focuses on practical challenges clinicians and researchers face when using PROMs in real-world
settings: how PROMs data can be incorporated into digital tools, including AI-supported prediction models,
and routine shared clinical decision-making; how crosswalks can help connect results across different
instruments and datasets to allow for more meaningful and accurate comparisons; and how changes in PROMIS
scores can be measured and interpreted in ways that are meaningful and actionable for patients and clinicians.

Benjamin Schalet, PhD
Assistant Professor, Dept of Epidemiology and Data Science
Amsterdam University Medical Centers

Using PROMIS to Determine How Individual Patients Change in Routine Care Assessment
J. Devin Peipert, PhD
125th Anniversary Chair and Professor of Health Outcomes Management
Centre for Patient Reported Outcomes Research (CPRPR)
University of Birmingham, UK

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