Program Highlights

Plenary 1 - Thursday, 9:45-10:45 am

The Global Revolution: Transforming Health Systems Through PROMs

Moderator: David N. Bernstein, MD, PhD, MBA, MEI
Boston Children's Hospital

PROMs are being used internationally to transform health systems. Insights
from international, national, and local initiatives will be shared, and speakers will examine
what it takes for PROMs to become part of the infrastructure of better care.

Making the Patient Voice Count; The Patient-Reported Indicator Surveys (PaRIS)
Michael van den Berg, PhD
Senior Health Policy Analyst
Organization for Economic Co-operation and Development (OECD)

From Measurement to Change: What Worked and What Failed
Dr. Slaveyko Djambazov, PhD, MBA
Founder and Managing Partner
HTA Ltd.

Beyond the Score: Making PROMs Matter for Value, Policy and Health Systems
Razan Alarafah, DDS, MBA
Senior Health Policy Expert
The G20 Global Innovation Hub

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Plenary 2 - Friday, 8:00-9:00 am

Operationalizing PROMIS for Meaningful Action: Advancing Systems,
Clinics, and the Patient Experience

Moderator: Susan Bartlett, PhD
McGill University

PROMs are being embedded in clinical workflows, used in national registries to monitor
outcomes at scale, and made central to the patient experience. Speakers will examine how
this is achieved while highlighting the essential contribution of patients
in developing and selecting PROMs.

Developing and Selecting Meaningful Outcome Measures
with Patient Research Partners. Why is it so Difficult?
Maarten de Wit, PhD
Patient Expert
Stichting Tools

Patient-Reported Outcomes as a Core Engine of the Learning Health System:
From Measurement to Meaningful Clinical and Population Impact
Lara Evans, MD, MPH
Associate Chief Clinical Officer for Patient Engagement
Director, Patent Reported Outcomes, Quality Institute
Professor of Clinical Medicine, University of Rochester

The Fallacy of Routine Outcome Measurement: Measure Less, Learn More
Rudolf W. Poolman, MD, PhD
Professor of Orthopaedic Surgery
OLVG Amsterdam
Leiden University Medical Center

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International Session - Friday, 9:35-10:25 am

                                                                PROMIS Around the World - What's New?
                                                                                                  Moderator: Caroline Terwee, PhD
                                                                                     Chair, PHO International Committee
                                                                                         Head of the Dutch-Flemish PNC

Learn about the International Committee's activities, the new HealthMeasures website,
PROMIS translations around the world, and work of PROMIS National Centers (PNCs).

Helena Correia, Lic., Northwestern University
Felix Fischer, PhD, PNC Germany
Stein Arne Rimehaug, MPhil, PT, PNC Norway
Nan Rothrock, PhD, Northwestern University
Julia Weigle, MS, Northwestern University

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Plenary 3 - Friday, 3:45-4:45 pm

Real-World PROMs Action: Crosswalks, Interpretation,
and AI for Better Care

Moderator: Felix Fischer, PhD
Charité – Universitätsmedizin Berlin

Clinicians and researchers face practical challenges when using PROMs in real-world
settings, including how PROMs data can be incorporated into digital tools; how
crosswalks can help connect results across different instruments and datasets; and
how changes in PROMIS scores can interpreted in ways that are meaningful and actionable.  

How to Use PROsetta Stone and Linking Methods to Crosswalk
Patient Scores from Different Measures
Benjamin Schalet, PhD
Assistant Professor, Dept of Epidemiology and Data Science
Amsterdam University Medical Centers

Using PROMIS to Determine How Individual Patients Change in Routine Care Assessment
J. Devin Peipert, PhD
125th Anniversary Chair and Professor of Health Outcomes Management
Centre for Patient Reported Outcomes Research (CPRPR)
University of Birmingham

PROMs at Scale: What Works, What Doesn't, and What's Next at Mass General Brigham
Andrea Pusic, MD, MHS
Professor of Surgery, Harvard Medical School
Chief, Division of Plastic and Reconstructive Surgery
Director, Patient-Reported Outcomes, Value & Experience (PROVE) Center

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