Register by August 1 and Save!
The 11th Annual PROMIS International Conference
Leveraging the Patient Voice from Clinical Decision-making to Policy: The Value of PROMIS
October 26-28
Hyatt Regency Milwaukee
Early Registration is open!
Register by August 1 and save
Conference Program Chairs
J. Devin Peipert, PhD
University of Birmingham, UK
Anne Thackeray, PhD, PT, MPH
University of Utah, USA
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The journal considers original educational papers, current concepts, study protocols, research manuscripts, (systematic) reviews, commentaries on articles, and letters to the editor. The journal also publishes editorials, special issues, and conference abstracts.
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Getting Started with PROMIS
August 13, 2025 (Wednesday), 10 am CT
This session will provide guidance on how to select and access PROMIS measures. PROMIS domains and measure types (including CATs, fixed forms, profiles, and screen-to-CATs) will be discussed and demoed. The session will include navigation of www.healthmeasures.net to access measures and related resources. Bring your questions for Q&A at the end!
Presenters:
Michelle Langer, PhD, Executive Director, Northwestern University Center for Outcomes Research and Education, Chicago
Nejma Benzaari, MSPH, Senior Program Coordinator, HealthMeasures, Northwestern University, Chicago
Moderator:
Joseph Kucksdorf, PT, DPT, DSc, Emplify Health by Bellin, Green Bay
Check out the new APRO Articles
Embracing the Future of Patient-Centered Care with Advances in Patient-Reported Outcomes
Caroline B. Terwee, David Cella
Establishing minimal clinically important difference for PROMIS physical function improvement after revascularization for peripheral artery disease
Comparison of PROMIS Profile CAT scores of stroke patients in a hospital and rehabilitation setting
New Publications
Maas MB, Reid KJ, Jimenez M, Lopez M, Miller J, Carnethon MR, Zee PC, Knutson KL, Koralnik IJ. Multidimensional Characterization of Long COVID Fatigue. Behav Sleep Med. 2025 Jun 19:1-10. doi: 10.1080/15402002.2025.2522671. Epub ahead of print. PMID: 40537100.
The authors examined relationships between fatigue, mood, cognition, and sleep in individuals with long COVID. Self-reported health status (fatigue, anxiety, depression, cognitive function, sleep disturbance) was measured with PROMIS questionnaires. Cognition was also assessed using performance-based tests, and sleep and circadian rest-activity rhythms were assessed using wrist actigraphy and a sleep diary. A subset also underwent a more comprehensive sleep study. Most of the sample had moderate or severe fatigue. Higher fatigue was associated with worse depressive symptoms and worse patient-reported (but not performance-based) cognitive function. Fatigue severity was also associated with greater disruptions of the rest-activity pattern.
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van Hof KS, Herkendaal AF, Ten Koppel PGJ, Baatenburg de Jong RJ, Sewnaik A, Offerman MPJ. Patients' and Physicians' Perspectives on Using an ePRO Structure at the Otorhinolaryngology Outpatient Clinic. Laryngoscope. 2025 Jun 17. doi: 10.1002/lary.32353. Epub ahead of print. PMID: 40525491.
The authors aimed to evaluate the patient and physician experience of using electronic PROMs in outpatient rhinoplasty care. PROMIS-10 was used in addition to disease-specific PROMs, and real-time scores were presented in a dashboard during the consultation. Patients completed a patient-reported experience measure, and semi-structured interviews were completed with patients and physicians. Quantitatively, patients reported fewer missed consultation topics when receiving the electronic PROM care versus routine care. Qualitatively, both patients and physicians perceived more value of disease-specific versus generic PROMs, and patients felt more empowered and prepared when using PROMs. For the future, patients wanted a patient dashboard, and physicians wanted to use the aggregate data for quality improvement.
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Segawa E. Increase of Uncertainty in Summed-Score-Based Scoring in Non-Rasch IRT. Appl Psychol Meas. 2025 Jun 12:01466216251350342. doi: 10.1177/01466216251350342. Epub ahead of print. PMID: 40520435; PMCID: PMC12162545.
This psychometric paper examined in a more granular way the amount of uncertainty introduced by summed-score scoring compared to response-pattern scoring for PROMIS short forms. Using the methods described in the paper, the author was able to identify short forms for which the summed-score approach introduced either very small increases in uncertainty (suggesting limited advantages of response-pattern scoring, especially when resources make computerized administration challenging) or large increases in uncertainty (suggesting instances where summed-score scoring may be problematic).
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**Bonus paper - not PROMIS-specific but of interest to PROMIS readers**
Vickers A, Nolla K, Cella D. Drop the "M": Minimally Important Difference and Change Are Not Independent Properties of an Instrument and Cannot Be Determined as a Single Value Using Statistical Methods. Value Health. 2025 Jun;28(6):894-897. doi: 10.1016/j.jval.2024.09.018. Epub 2025 Apr 10. PMID: 40216310.
The authors discuss the limitations of the concept of the minimally important difference and emphasize the need to interpret scores in context.
Thank You to Our
2024 Conference Sponsors
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