Register Now! Don't miss out.
The 11th Annual PROMIS International Conference
Leveraging the Patient Voice from Clinical Decision-making to Policy: The Value of PROMIS
October 26-28
Hyatt Regency Milwaukee
Registration is open!
Register Now
Conference Program Chairs
J. Devin Peipert, PhD
University of Birmingham, UK
Anne Thackeray, PhD, PT, MPH
University of Utah, USA
Publish your research in
the official journal of the PHO
Author fees waived through 2026.
Click to learn more.
The journal considers original educational papers, current concepts, study protocols, research manuscripts, (systematic) reviews, commentaries on articles, and letters to the editor. The journal also publishes editorials, special issues, and conference abstracts.
FREE WEBINAR - REGISTER NOW!
September 17 (Wednesday), 10 am CT
PROMIS-16 in the PROMIS Arsenal of Patient-Reported Outcomes Measures
The Patient-Reported Outcomes Measurement Information System (PROMIS®) 16-item Profile (PROMIS-16) is minimally burdensome health-related quality of life profile measure that yields eight scale scores (physical function, ability to participate in social roles and activities, anxiety, depression, sleep disturbance, pain interference, cognitive function, and fatigue), physical and mental health summary scores, and the PROMIS Preference (PROPr) score.
This presentation will summarize the development and psychometric properties of the PROMIS-16 and discuss how it fits within the PROMIS arsenal of patient-reported outcome measures.
Presenters:
Maria Orlando Edelen, MA, PhD (Quantitative Psychology), Senior Behavioral Scientist, RAND Corporation, Boston
and Adjunct Faculty at the Patient Reported Outcomes, Value and Experience (PROVE) Center
Department of Surgery, Brigham and Women's Hospital, Boston
Ron Hays, PhD, Distinguished Professor, Division of General Internal Medicine and Health Services Research, University of California, Los Angeles and Affiliated Adjunct Researcher at the RAND Corporation
Moderator: Joseph Kucksdorft, PT, DPT, DSc, Emplify Health by Bellin, Green Bay
Check out the APRO Articles
Embracing the Future of Patient-Centered Care with Advances in Patient-Reported Outcomes
Caroline B. Terwee, David Cella
Establishing minimal clinically important difference for PROMIS physical function improvement after revascularization for peripheral artery disease
Comparison of PROMIS Profile CAT scores of stroke patients in a hospital and rehabilitation setting
New Publications
Zuckerman J, de Buck van Overstraeten A, Melmed GY, et al. Improvement in Functional Outcomes Following Ileal Pouch-Anal Anastomosis: Results from the United States Ileal Pouch-Anal Anastomosis Study. Dis Colon Rectum. 2025 Jul 23. doi: 10.1097/DCR.0000000000003894. Epub ahead of print. PMID: 40698674.
This is a prospective study of outcomes of patients undergoing ileal pouch-anal anastomosis for ulcerative colitis or unclassified inflammatory bowel disease. Patient-reported outcomes were assessed preoperatively and at 3, 6, and 12 months using the Colorectal Functional Outcome and Wexner Score for bowel function, International Prostate Symptom Score for urinary function, and PROMIS Sexual Function and Satisfaction and PROMIS Global-10. Sexual interest significantly increased for both men and women, and sexual satisfaction and orgasm ability significantly increased for men. Global physical and mental health also improved. Refer to the article for non-PROMIS-related outcome results.
---------------
Fakorede S, McCloskey C, Wernimont C, Kratz AL, Abou L. Beyond physical function: the impact of nonmotor symptoms on activities and participation in wheelchair users with multiple sclerosis. Int J Rehabil Res. 2025 Jul 17. doi: 10.1097/MRR.0000000000000678. Epub ahead of print. PMID: 40671671.
In this national survey of 89 adult wheelchair users with multiple sclerosis, the authors examined the role of nonmotor symptoms (Fatigue Severity Scale, PROMIS Depression, PROMIS Pain Interference) beyond physical function (PROMIS Physical Function) on activity and participation outcomes. Outcomes included self-efficacy (PROMIS Self-Efficacy for Managing Daily Activities), participation (Community Participation Indicators - control subscale, PROMIS Ability to Participate in Social Roles and Activities), and satisfaction with participation (PROMIS Satisfaction with Social Roles and Activities). Nonmotor symptoms explained 6% additional variance for self-efficacy, 21% additional variance for community participation control, 29% additional variance for social role participation, and 13% additional variance for participation satisfaction. Specifically, pain interference was the nonmotor symptom that was significantly associated with all the outcomes.
---------------
Wolff AC, Absolom K, Ahmed S, et al. Enhancing provider adoption of patient-reported outcome measures (PROMs) through implementation science: insights from two international workshops. J Patient Rep Outcomes. 2025 Jul 1;9(1):77. doi: 10.1186/s41687-025-00911-3. PMID: 40591164; PMCID: PMC12214070.
While not PROMIS-specific, this article is a valuable look at applying implementation science principles to the uptake of patient-reported outcome measures, with a focus on provider adoption and the Capability, Opportunity, Motivation-Behavior (COM-B) model and the Theoretical Domains Framework.
Thank You to Our
2024 Conference Sponsors
PROMIS®, Patient-Reported Outcomes Measurement InformationSystem®, and PROMIS logo are registered trademarks of the U.S. Department of Health and Human Services (HHS).
