FREE WEBINAR - REGISTER NOW
PROMIS Preference Score (PROPr) Valuation in the Netherlands - First Results
December 10 (Wednesday), 12 pm CT
Presenter: Benjamin Schalet, PhD
Universitair Docent (Assistant Professor), Amsterdam University Medical Centers, Department of Epidemiology and Data Science, Amsterdam, The Netherlands
Moderator: Paul Klapproth, MD
Charité Universitätsmedizin Berlin, Germany
Health economists use preference-based quality of life instruments to conduct cost-benefit analyses, which help inform policy makers about the value of interventions. The most commonly used measure for this purpose is the EQ-5D-5L.
The PROMIS-Preference measure (PROPr) is a relatively new instrument developed in the US that provides possible advantages in terms of health range and efficiency. However, the underlying value set is based on data from a US-based sample. Dr Schalet will discuss the current development of a country-specific PROPr value set, reflecting the preferences of a Dutch population, and provide a short introduction to this topic.
Join us for the 2026 Training Workshop: Fundamentals of PROMIS
New Online Format - A 3 Part Series
The goal is to help you connect the dots – from fundamentals to putting PROMIS into practice.
Using a seminar model, this new online training workshop is designed for clinicians, researchers, health system leaders, and quality leads interested in getting started with PROMIS.
Get Published! Submit your research to the official journal of the PROMIS Health Organization
Milwaukee conference abstracts will be published in late 2025.
Author fees waived through 2026.
The journal considers original educational papers, current concepts, study protocols, research manuscripts, (systematic) reviews, commentaries on articles, and letters to the editor. The journal also publishes editorials, special issues, and conference abstracts.
Thanks for making this year's conference a success!
The 11th Annual PROMIS International Conference
Leveraging the Patient Voice from Clinical Decision-making to Policy: The Value of PROMIS
October 26-28, 2025- Milwaukee
Check out the APRO Articles
Measuring Health-Related Quality of Life During Pregnancy: A Prospective Cohort Study
Jason H. Raad, Polly McCracken, Janel Hanmer
Manrui Zhang, Anthony Rodriguez, Rebecca Weir, Janel Hanmer, Jordan M. Harrison, Maria O. Edelen
M.K. Lee, X. Tang. D. Cella. V. Grzegorczyk, K.J. Ruddy, A.L. Cheville
Christian E. Vazquez, Derek Falk, Dana P. Urbanski, Katherine Kwong, Diana Abudu-Birresborn, Juanita-Dawne Bacsu, Moka Yoo-Jeong, Hye Won Chai, Wonkyung Jung, Matthew Lee Smith
Brief report: Relationship of fraility and age with nonresponse to patient reported outcome measures
Claire R. Morton, Zara R. Cooper, Ronald Bleday, Jennifer E. Fanning, Jill Steinberg, Chengbo Zeng, Andrea L. Pusic, Jason B. Liu
New Publications
The authors mapped the items of the PROMIS Physical Function v2.0 bank and the sub-banks of Mobility v2.1 and Upper Extremity v2.1 to the International Classification of Functioning, Disability, and Health (ICF). Across all three banks, the largest proportion of items were mapped to the D4 Mobility ICF chapter. There was moderate representation of the D5 Self-care chapter and minor representation of the D6 Domestic Life chapter in the Physical Function and Upper Extremity item banks. Refer to the article for full details on the mapping results. These findings can enhance interdisciplinary communication and facilitate broader adoption for those who may be unfamiliar with these measures.
The authors examined the association between membership in a longitudinal multimorbidity trajectory group (developed using a latent growth curve model of chronic condition accumulation in young to middle age) and a cross-sectional assessment of physical function in middle age. Physical function was assessed using PROMIS Physical Function Short Form 20a and several performance-based tests whose scores were summarized as a composite score. Both patient-reported and performance-based physical function were lower in those with earlier and more rapid accumulation of chronic conditions (Late 20s-Fast and Mid 20s-Fast) compared to Early 50s-Slow trajectories.
The authors used PROMIS questionnaires to assess gastrointestinal symptoms in a sample of 41 individuals with the rare disease of osteogenesis imperfecta. Participants also received a gastroenterology consultation. Adult measures were used for all participants. Generally, there were no differences in gastrointestinal symptoms compared to the general population although symptoms increased with age and worse scoliosis.
The authors did a critical appraisal of commonly used patient-reported questionnaires for depression using COSMIN criteria: Beck Depression Inventory (BDI), Center for Epidemiological Studies Depression (CES-D), Hospital Anxiety and Depression Scale (HADS), Patient Health Questionnaire (PHQ-9), and PROMIS Depression. Only the PROMIS Depression had a rating of adequate or very good on all measurement properties. It was the only measure that achieved at least an adequate rating on structural validity and internal consistency.
PROMIS®, Patient-Reported Outcomes Measurement InformationSystem®, and PROMIS logo are registered trademarks of the U.S. Department of Health and Human Services (HHS).
